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For Lyme Disease Sufferers, 'Under Our Skin' Is Essential

For Lyme Disease Sufferers, 'Under Our Skin' Is Essential

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By Joanna Kerns (as told to Steve Pond)
Published: November 10, 2009

(“Under Our Skin” screens Wednesday night at the Arclight Sherman Oaks as part of TheWrap Screening Series. Kerns will join director Andy Abrahams Wilson for a Q&A after the movie. Click here to RSVP for the screening.)

My daughter Ashley is 31. She’s an attorney. She went to law school. She passed the bar. She made the Law Review. She was published.

And now she has trouble reading a page in a book. She can’t drive, and three months ago she had to quit her job because she couldn’t stay awake, and was in so much pain she couldn’t function.

That is what Lyme disease does. It’s a silent killer, a real disease that can ruin your life. And until the medical community opens up and starts looking at it in a different way, it will continue to plague us.

I’ve been reluctant to talk about this until now, because my daughter is the one who’s sick, not me. But when I saw Andy (Abrahams Wilson)’s film “Under Our Skin,” I thought, oh my God, this film needs to get a lot of attention, because that’s the only way things are going to change.

Ashley’s story started when she was about 12 years old. From that age on, she suffered from intense joint pain that would migrate from joint to joint for no reason. She also had debilitating fatigue, and insomnia; when she did sleep, it wasn’t refreshing sleep. She was able to overcome it at times, but she would always have flare-ups.

From everything I read, I initially thought it was Lyme disease, and we had her tested many times. But she was being tested with the ELISA test, which we now know is a substandard test that only shows the Lyme spirochete in the early stages of exposure.

Also, the medical community in California didn’t want to even entertain the idea of Lyme. Ashley ran into every conceivable diagnosis. Doctors told us that she was overweight, that she had a little bit of hyper-mobility, that it was all in her head.

Right: it’s all in her head. You get sick, you give up a job you’d worked hard to get and where you earn a good living, you can’t think, and people are telling you it’s all in your head? On top of the pain and fatigue that she already felt, that caused her anguish and heartache and depression.

We didn’t get a proper diagnosis until recently, when I met a woman who had gone to India for treatment of chronic Lyme disease. Through her, I got to a doctor who gave Ashley a test that is looked down upon by the traditional medical community, and she tested strongly positive for Lyme.

She’s probably had it for 18 years, and she’s very, very ill right now. The only thing that’s been proven to cure Lyme is long-term antibiotics, but Ashley is so weak that they haven’t even started her on the antibiotics. She’s been doing a very strong homeopathic regimen to boost her immune system first, and then she’ll probably be on an IV and have to shoot antibiotics on a daily basis. And the thing is, we don’t know what will happen with insurance. So far, so much of this is outside of what insurance will pay for.

Unfortunately, I don’t think it’s changing on the health-care front. My doctor in Santa Barbara says he’s diagnosed three patients in the last six months with Lyme disease, but there’s a whole group of doctors out there who say the same thing: it doesn’t exist, there’s no such thing as late-stage Lyme. It’s a very political disease, and the only way it’s going to change is if a film like ‘”Under Our Skin” gets out there.

In my profession, I also see that this is an issue actors don’t want to talk about. If you’re a working actor and you have Lyme disease, you’re scared that the insurers who work on movies and TV shows won’t insure you. I think Parker Posey recently had to pull out of an Off Broadway show because she’d been diagnosed with Lyme, but she’s one of the few people who’s been open about it. And that needs to change.

So many people have stories like this, and I hear more of them every time we screen the movie. We’re in such trouble with health care in this country, because the profit margins that all these medical institutions demand are just getting in the way of people getting better. And until the medical community opens up and looks at things in a different way, and provides money for research, things won’t change.

Why is there such resistance to going down this road? I don’t know. All I know is that we’re going to do everything I can to get Ashley better. And that means supporting important works like Andy’s film, going wherever we have to go, and seeing whoever we have to see.

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Comments

December 14, 2009, 5:53PM
Theresa Says

joanna-thank you so much for speaking out about this. i am so sorry for what you and your daughter are going through. We have it in three generations in our family. My daughter was diagnosed 3 years ago after being sick for several years and she had to come from college. We did not know what was wrong and her life was turned upside down. I had her tested 3 times and she was negative. I finally went to an llmd as i had a gut feeling she had this.She tested positive for this and 2 coinfections. She is now doing well and graduated college and is now in graduate school. I was diagnosed one year ago after being sick with many strange symptoms for 12 years. I am improving but have a long way to go. my father has lyme and was just severely ill with babesiosa. The universal experience we all shared is most doctors are ignorant about this disease but also like to think they do know a lot. They misdiagnosed, failed to treat adequately, and did not treat us with respect and compassion. I could write a book as i know we all could. My prayer is that the medical community would become educated enough to refer people to the doctors who do know about this. I am now paying for all my own treatment as my insurance company denied me 3 times despite my spec scan showing encephalitis and my having numerous smyptoms of lyme and me living in the lyme capital-long island new york. Joanna my thoughts and prayers go to your daughter and family so that you all have the strength to deal with this. I hope that you continue to speak out. i speak to people all the time as my goal is to educate people but i can only reach the people in my little world. You can reach more people so i hope you can do this when you are able to. Wishing you all the very best!!!

December 03, 2009, 8:19AM
Madison Says

Dear Joanna:
I've been your number 1 fan for years since I was 11 years old as I watched you play Maggie on "Growing Pains". I have every episode and all your movies, and you've impacted my life more than you can know, as I am now working as a professor and writing my dissertation. I've also seen your daughter grow up and appear on interviews with you and on "Growing Pains". I can't tell you how shocked and saddened I am about Ashley's diagnosis. I will not only pray for you and your family, but I will support the film, and get the word out about it. I had a good friend die young of Lougerics disease and saw her misdiagnosed, so I know what you must be going through. Please use the media as a way to promote this film and cause. Go on talk shows /Oprah and other venues to get the word out. Best to you and Ashley, and I'll do all I can to promote the cause/film.
Best,
Madison

November 24, 2009, 5:24AM
lorraine Says

I understand completely how you feel. My brother also has lyme and he is also coinfected.

That Nick is a real idiot, whoever posted that lame comment about since when is lyme have anything to do with driving.
What a dumb person, no tolerance. A mentally handicapped person would be smarter than that fool

Also the Insurance industry they are horrible, they dropped him.

I am sorry and for all the people that have it. I have seen Under Our Skin.

November 21, 2009, 7:57PM
C Says

Joanna,

Thank you for sharing your daughter's story. As you know it impacts the patient & the family, as well. Often the voice of celebrities is heard over that of the lay person. There are many of us with lyme suffering & you have helped bring it to the public, media & medical communities attention.
<3

November 19, 2009, 11:04AM
Amber Says

Joanna,

Thank you for speaking publically about your daughter's illness and ordeal.

There are thousands of us in the same boat.

There are thousands more who are still undiagnosed/misdiagnosed.

We try so hard to have our voices heard but we are often thrown aside.

We need someone like you who has name recognition to keep bringing the travesty that is happening in our Country to the forefront.

Most people believe whatever their Dr tells them.

They believe their Dr when they're told that a negative test rules out lyme, and short term treatment only is required for a person who is diagnosed with lyme.

"Under Our Skin" is a great film that is helping to open many eyes....but still it's not enough.

I would love to see you discuss your daughter's ordeal publically on a credible show like Oprah, that gets worldwide attention.

I know many people who have chronic lyme and will not be able to afford treatment because it requires alot of out of pocket costs.

It really is an unrecognized epidemic.

Please keep doing what you are doing....we all appreciate your efforts.

I hope that your daughter's ordeal capture's the attention of many other media outlets.

I only wish that someone cared about all of our stories, suffering and frustration.

I can't imagine this happening in our Country with any other disease, can you?

All the best to you and your daughter.

November 16, 2009, 5:14PM
jms Says

*Envita Medical Center, Scottsdale, Arizona*
For great information on Lyme Disease go to:
www.envita.com
Click on the top right link "Whiteboard"
It's a free sign-up to view educational videos on Lyme Disease, they also have videos on nutrition and supplements.

November 13, 2009, 4:17PM
Maureen Says

Johanna,
My heart goes out to you as I saw my brilliant young son go through the same thing. He's now doing homeopathy and we're seeing lots of improvement but we're not out of the woods yet.
After years of watching my son deteriorate and getting no help from the medical establishment I have little faith left in our health care system.
We do have a lyme literate doctor on board. But with this disease I believe that you basically are on your own as no hospital will really deal with a patient going through a die-off reaction or a herxheimer that treatment will cause.
So we decided to try all the alternative routes. And I thought you might want to know that my lyme literate doctor then admitted that he's seeing homeopathy help people when nothing else did.
Good luck to you and your family.
Maureen

November 12, 2009, 8:15PM
Laura Says

I was first diagnosed in with Lyme Disease in 1991. I lived in NYC and my sister lived in CT. When I got sick, I got really sick. All the symtpoms where there - fatigue, foggy thinking, slurred speach, pain, immense pain. No rash and although I knew about Lyme I thought at first I had a really bad case of the flu. When I wasn't getting better after a few weeks I went to my doctor's office and let me tell you, he was a wonderful practitioner. He tested me right away for Lyme and used the Western Blot test which came back very high. I was treated for a long time (6 months) with anitbiotics. For awhile I couldn't walk, but with my doctor's help I eventually pulled out of my nosedive and was heading back to a normal life. (My doctor taught at Columbia Medical and was VERY well read and up to date on what was out there. For this I am forever grateful, because what he knew, he taught to me, and I in turn taught other doctor's about this disease after he passed away.)

During the 1990s I was infected 3 more times after the initial diagnosis. Bitten and tested again and again. In 2001 I moved out to Los Angeles and away from the deadly east coast to what I thought was a less infected part of the country. Guess what? Early this year I was bitten in the Topanga area of LA and suffered again for 2 months before finally admitting to myself that it was here too. Once again, right outside my front door. My new doctor didn't know much about Lyme Disease and again I found myself educating a medical professional. It took some convincing on my part to get him to go for the Western Blot test. He was very skeptical and when the results came back positive for active Lyme, he referred me to an infectious diseases specialist. Both doctors assured me that mine was a very rare case and that Lyme was not a big problem out here. I told my specialist about "Under Our Skin" and he said he'd never heard about it. I asked him to watch it so he could learn what we all know: that a lack of awareness and prompt treatment can mean the difference between life and death.

As a recovering Lyme sufferer, I continue to treat myself with anitbiotics and practice healthy living as much as I can. Things are getting better, but I am disabled and will be so to varying degrees for the rest of my life. We must educate medical professionals to become more aware and willing to treat this terrible, terrible disease.

Good luck everyone. We need to stand up and be counted and most important, be heard.

Laura

November 12, 2009, 9:56AM
Nani Luculescu Says

I was at the special screening last night in Sherman Oaks & heard actress Joanna Kerns speak to us about her daughters struggle with Lyme. Ashley is 31 years old & was only diagnosed with Lyme disease 4 months ago. Misdiagnosed since age 11, she is now undergoing treatment to boost her immunity until her body is ready to handle the heavy IV antibiotic treatment. Seeing "Under Our Skin" compelled Joanna to pubicly support the film & her mission is to get more people to see if for themselves. She even suggested that as part of your yearly physical, patients should undergo Lyme testing as part of routine care. =)

I just wanted to thank her for her support on behalf of my dad & all other Lyme patients. PLEASE REQUEST "UNDER OUR SKIN" AT YOUR LOCAL LIBRARY!!!!

November 12, 2009, 8:31AM
Kathleen Says

Joanna,
Thoughts and prayers for your daughter. My daughter was diagnosed with Lyme disease freshman year in college after 3 years and thirteen physicians. How fustrating to know your child is sick, yet being told there is nothing wrong with her then being shipped to the next specialist. Ofice visits started with the physician stating," How is school? Do you have problems with your friends? How are your grades?" We were lucky to find a Lyme Literate Physician. After three years of treatment she was in remission. Now it is starting to return.
Thank you for speaking out about this illness. If other public faces like yourself would speak out, perhaps the politicians who have refused to pass Bills for treatment and research,and physicians who have refused to acknowledge what a devistating disease Lyme truly is will be forced to do the right thing.
Have you gone on the CALDA or LDA websites? There may be information of interest there for you and your daughter.
Thank you for the courage you and your daughter have shown.

November 12, 2009, 6:05AM
barbara white Says

Joann...i just wanted to say that for many iv abx is what is needed...i have had a picc line in my arm for a year now with absolutely no problem what so ever....many of my friends have had and currently have picc lines...you must take certain precautions but in most cases they work out just fine....

God Bless

November 12, 2009, 12:08AM
Eleanor Kuser Says

Joanna, I just read the article and was very moved. I've had Lyme since '99 and did not know for years. Recently I am trying out the Beam Ray Rife machine and after my first 90 minute treatment I felt a difference in my body.

I first saw this specific model at the Cancer Control Society's annual convention in Universal City Sheraton, in Aug.'08, and again in Aug.'09. THis year one of the people at the Beam Ray booth was a Lyme survivor who claimed the Beam Ray was what got him better.

I just sent Andy an email to forward to you because I had not realized there was this Blog feature until I returned to read the article one more time before retiring to bed! Feel free to contact me. I am in Santa Barbara.

November 11, 2009, 11:37PM
BettyG, Iowa lyme activist Says

Joanna,

Thank you for coming out publicly to discuss your daughter, Ashley's, lyme disease and how it has affected her and giving up her law career which she worked so hard to achieve!

Yes, please read PJ LANGHOFF's latest book, THE BAKER'S DOZEN, with over 1,000 links showing rebuttals to IDSA drs. statements, etc. You will be impressed by her in-depth work.

Yes, Andy's UNDER OUR SKIN documentary shows what actually is going on in USA. Shame on the govt. for all their conflicts of interest and $$$$. HOG WASH.

I've had chronic lyme for 40 years this christmas; 35 yrs. misdiagnosed by 40-50 drs...UNACCEPTABLE! Many other complications due to all these years of "believing" every dr. who diagnosed me with a new illness/symptom.

Please work also on our 2 lyme bills in congress, HR 1179 and S 1352 trying to get our bills ON THEIR AGENDA to be discussed openly by the subcommittees. They've been there almost 11 years now trying to get to 1st base.

We wish Ashley the best of luck on getting into REMISSION as we all hope to get also. Thanks again for speaking out.

Enjoyed your acting for years; keep up the good work! hugs :)

November 11, 2009, 8:07PM
Nick Says

Since when is not being able to drive caused by Lyme Disease?

This site is quickly becoming a Hollywood version of the quack medical pages at HuffPo.

November 11, 2009, 7:54PM
Amie Says

Joanna,
Thank you for sharing your daughter's accounts. I know about this disease all too well.
I wish your daughter and your whole family, much luck. Please share if you come across something that works, or cures.

To my knowledge and experience, there is no cure. But if you find something, again, please share. I have been on Antibiotics, off and on for 8 years. I do have months that I do better, but I still fight the fight.

The PICC line was hell and I don't recommend it. I prefer the intramuscular injections.

God bless your daughter and whole family,
Amie

November 11, 2009, 7:51PM
AlyssaO Says

Joanna,

Thank you for speaking out. UOS is a powerful film because it not only tells the real story of Lyme disease and treatment, it is helping people become aware of what Lyme is, what symptoms you might have and how to go get help. The more people are aware, the faster they will get treatment and not have it go on as long as some of the other commenters on this list as well as your daughter. Your daughter is lucky to have a supportive mom like you. Please keep ringing the bell for all of us Lyme sufferers!

November 11, 2009, 6:58PM
SIck and Tired in CT Says

Thanks Joanna

Ive had Lyme since before your daughter was alive. The year she was born I was trying to make it through high school with many of the same problems that she has now and not knowing why. Lyme was not widely publicized back then. I thought it was all in my head. Since then Ive watched my dreams die, my prospects wither away. Ive seen my friends and family pass on one by one many of them thinking I was an abject miserable failure. Maybe theyre right. Maybe I could have handled this better. Im still alive; I can still walk, see, hear, and speak and I know there are others in the world far far worse off than I am and I am grateful for every thing I do have.
One of the nay-saying self proclaimed lyme disease "expert" doctors featured in Under Our Skin now lives not too far from where I grew up and was infected with lyme. How do you think I feel every time I drive past his home?

November 11, 2009, 5:38PM
wendy Says

thank you. no words for how much i appreciate what you are doing for your daughter and for all of us that are too sick to be advocates for ourselves. people out here in CA used to look at me like i had antlers when i told them i was very ill with Lyme. some still do... but in the past 2 months, i sent 5 very sick people to my doctor and all 5 people have been diagnosed with Lyme and now are getting desperately needed medical help. that is just the people *i* know... slowly people are getting educated. but it takes energy to do that, energy i wish i had. unfortunately Lyme, Babesia, and Bartonella use up quite a bit of my energy.
so THANK YOU for everything that you are doing. *hugs*

November 11, 2009, 3:43PM
Joanna Kerns Says

I want to thank everyone for all the kind words of support for my daughter's recovery.
As a mother, I felt intuitively for years that Ashley had Lyme disease but sadly listened to doctor's blind to the specifics of Lyme and trusted their opinion. Now I know better. Too many doctor's who are specialists in one area have no understanding or compassion outside of their specialty.When I see these comments I know all of you have had the same experience. It's time for all of us that are well enough to take action for those who cannot. My husband and I urge you to tell everyone you know about " Under Our Skin"!

November 11, 2009, 1:25PM
Gayle Says

Documentary films can have tremendous reach and power. I sincerely hope your daughter and all the sufferers of this disease get the help they need.

November 11, 2009, 11:59AM
Margie Says

Joanna.....

I am sorry that your daughter has this disease and has become so ill that she can't even start treatment yet....

I have been suffering for about 20years( on and off) and I know the road she has before her....

When you are a suffer with Lyme Disease you can't advocate for your self...

Thank you for sharing this and speaking out..
... it not only helps your daughter but all of us in the Lyme Community.....

praying your daughter will get the strength to start treatment...

again thank you for voice....

November 11, 2009, 11:47AM
Julie Zabrucky Says

Thanks for speaking up Joanna! We need more brave people like you to break the silence. I'm so sorry that your daughter is suffering with this hideous disease. With healthcare reform possibly around the corner President Obama needs to know how many people are suffering in silence, are being being misdiagnosed and ignored by mainstream medicine, and or are unable to receive proper treatment because of the politics behind the illness. (Often no insurance coverage). How many people can afford to pay thousands of dollars out of pocket for long term antibiotic treatment? Which is often needed in the Late Stages for even a chance of recovery. I now have late stage Neuro-Lyme because I was misdiagnosed for at least 5 1/2 years by a world renowned University. My fist Lyme Elisa was negative so Lyme was ruled out. Under Our Skin tells the story so well! Thanks to Andy Abrahams Wilson and you for making a difference! Under Our Skin is a great teaching tool and I give the movie to all my doctors! May healing come to your daughter. Blessings~ Julie

November 11, 2009, 11:25AM
Debbie Says

My husband has Lyme - probably has had it for many, many years.
It took quite a while to find a Lyme literate doctor. He has been treated in various ways, but is still struggling. He is on disability. He uses a walker or wheelchair. His cognitive functions have been extremely affected. He lost vision in one eye.
Our Neurologist tells us he has "MS". Our insurance company will pay for MRI's, physical therapy, any testing, medications, etc., as long as the diagnosis is listed as "MS". They don't want to hear the word "Lyme" (even though my husband has been an outdoor person, hunter, fisherman, etc. all his life in PA - a hotspot for Lyme), therefore we cannot get a doctor in the "regular" medical community to listen to us or provide the care he needs. It is sooooooo frustrating.
The costs to give proper treatment for Lyme would be much cheaper than the life-long treatment he will receive with MS.
We cannot afford to pay out of pocket for intensive Lyme treatment.
Please keep the issue in the limelight.

November 11, 2009, 11:11AM
Allison Caruana Says

Joanna,

I applaud you for taking action to promote awareness of this disease. I have suffered for over 30 years before my positive results were finally recognized. This disease is horrific and the atrocities being permitted to occur in the medical field have to brought forth and those responsible for MAKING us suffer this long need to be held accountable!

Thank you,
Allison Caruana

November 11, 2009, 9:44AM
Jennifer Navara-Rahilly Says

Joanna,

I cannot express enough just how sorry I am that your daughter is suffering so much. My mom is going through the same thing with me and now my son, her grandson. I too went undiagnosed sice childhood, I am now 33 years old and on aggressive IV antibiotics as well as oral meds. My son is being treated too.

I commend you for taking a stand against this terrible, debilitating disease. I pray that this will start to change things for so many of us who are suffering in silence.

Thank you, thank you, thank you!! I applaud you!

November 11, 2009, 9:42AM
Connie Says

Joanna thank you for coming forward and sharing your daughter's story. It is almost identical to that of my own daughter. She is now 17, but started with the same things when she was 11-1/2. There has got to be more done in the medical community about tick borne illnesses.

November 11, 2009, 8:29AM
Helen Raser Says

Joanna,

As the mother of a beautiful 22 year old daughter whose life has been stolen from her because of this disease, my heart goes out to you. I know first hand the pain you are in watching your child suffer. It's the greatest torture on earth that a mother can endure.

I commend you and thank you from my heart for stepping up to the plate and speaking out for the MILLIONS of victims of this disease that are part of the politics, greed, and egos that have thrust us all into this "medical underground" that feels like a science fiction movie we can't seem to get out of.

Thank you for your courage and determination ... you ARE making a difference along with Andy Abrahams Wilson and his poignant film, Under Our Skin. We need more angels on earth like you!

November 11, 2009, 8:29AM
Helen Raser Says

Joanna,

As the mother of a beautiful 22 year old daughter whose life has been stolen from her because of this disease, my heart goes out to you. I know first hand the pain you are in watching your child suffer. It's the greatest torture on earth that a mother can endure.

I commend you and thank you from my heart for stepping up to the plate and speaking out for the MILLIONS of victims of this disease that are part of the politics, greed, and egos that have thrust us all into this "medical underground" that feels like a science fiction movie we can't seem to get out of.

Thank you for your courage and determination ... you ARE making a difference along with Andy Abrahams Wilson and his poignant film, Under Our Skin. We need more angels on earth like you!

November 11, 2009, 6:30AM
Cindy Says

Thank you so much for getting involved ...I am so sorry to hear about your daughter. I hope that she will start feeling better soon.
This is an insidious disease, that so many of us are suffering from. I still find it hard to believe that the medical community has such a hard time dealing with it...Yes political...but the suffering needs to stop.
Sending good wishes to your family. Thank you again for your support.
Cindy

November 11, 2009, 6:29AM
Cindy Says

Thank you so much for getting involved ...I am so sorry to hear about your daughter. I hope that she will start feeling better soon.
This is an insidious disease, that so many of us are suffering from. I still find it hard to believe that the medical community has such a hard time dealing with it...Yes political...but the suffering needs to stop.
Sending good wishes to your family. Thank you again for your support.
Cindy

November 11, 2009, 6:01AM
Jorene Thimmes Says

Joanna, I am so sorry to hear your daughter. Lyme disease has taken the past two years from me. Thank you so much for bringing much needed awareness to this horrific disease!

November 11, 2009, 5:47AM
Barbara White Says

Joanna thank you so so much for taking a stand on this horrific disease that is continuing to delibate many many people all over the world. I hear of stories almost daily now about people suffering...many misdiagnosed for a long time. Ive been very very sick since may 07 and im now a patient of the doctor featued in UOS.....i HIGHLY recommend that you get your daughter to see him asap...he is the best and unfortunatley he gets the patients that the other doctors have no luck with....like me.

We will eventually have a victory but we need people to speak out about what is really going on so more doctors will treat without fearing that their medical licenses will be suspended or revoked.

Wish you the best
God Bless
Barb White

November 11, 2009, 5:09AM
Robin-CT Says

Joanna, I am so sorry your daughter has had to suffer for so long and truly hope she is on her way to recovery. Thank you for speaking out. We need more brave people like you to share their stories so this terrible disease can be treated properly!! Thank you so much!!!

November 11, 2009, 3:53AM
Ria Heslop - UNITED KINGDOM Says

Firstly I send best wishes to 'Ashley' and hope that she gets the correct care as soon as possible.

Under our Skin and Andy Abrahams is just a God Send to everyone in the Lyme community, to get the word out at how serious a problem Lyme Disease is.

Sadly this is a worldwide problem - I live in the United Kingdon and travel to the USA for treatment - I personally have suffered so much, thankfully after a journey of seeing the 'wrong' doctors I finally found the correct doctor and now I am making steady progress and month by month things are changing for me, my story can be read at www.jemsekspecialty.com/shownews.php?id=13

So anyone reading this please ensure you visit ILADS for information and get the correct medical care from the outset.

Best Wishes,
Ria

November 11, 2009, 1:29AM
Nathalie Says

Love what u are doing by spreding the movie and educate others by it. I hope u can bring the movie to Sweden, it would be great! In this country they have no Lyme dokters at all, so every Lyme patient are forsed to stay sik or if they have money they go to Germany for antibiotic treatment.
I have Lyme for 15 years and was undiagnosed until 2007, but im still wery sik. We nead treatment!!!! I hope u continue publiching the movie and i hope some day u bring it to Swedens screnings. God Bless /Natti

November 11, 2009, 12:38AM
Vicki G. RI Says

These horrific stories are everywhere and silenced at the same time. The truth is out and action needs to take place NOW. This disease is everywhere-any time the word is mentioned, somebody knows someone silently suffering and giving up. As a victim and an advocate, I have a bumper sticker on my vechile and people wait for me to leave the grocery store to talk and seek help. This is a tragedy.

Joanna, I'm so sorry your daughter is one of us, but we really need your voice. Nobody will speak out for us, and god knows we have tried. Oprah ignored pleas for years, as well as Dr. Oz. and every other avenue that has been taken...Very insulting to the lyme community. Human beings should never be thrown into diagnostic buckets like we have been.

The post above about PJ's latest book reads like science fiction, but her facts are just that, facts!

How in the world could this have been allowed to go on for so long? So many innocent thriving individuals and familys taken down to their knees, and the children never being given a chance.
We're getting louder and angrier as some of us get help, and the stronger need to stand up for less fortunate. I will get my life and career back, I'm feeling very hopful after over 25 years of torture, but I will never to be able sit idle until this madness ends.

Thank you for speaking out for us.. you are bringing a lot of hope into many peoples lives right now, by talking about Under Our Skin! And thank you The Wrap/Steve Pond for printing this article without the usual fabrication's seen from many other resouces!

November 10, 2009, 11:34PM
NANCY MACKAY Says

P.J. Langhoff has a serious of books called Its all in your head. and she has the only book that was entered as evidence at the IDSA July 30 09 hearings called The Bakers Dozen & The Lunitic Fringe you can find them at amazon. Her books speak the truth and she fights for all of us.

November 10, 2009, 10:40PM
Abby Says

Joanna - Thank you!!

Comments

December 14, 2009, 5:53PM
Theresa Says

joanna-thank you so much for speaking out about this. i am so sorry for what you and your daughter are going through. We have it in three generations in our family. My daughter was diagnosed 3 years ago after being sick for several years and she had to come from college. We did not know what was wrong and her life was turned upside down. I had her tested 3 times and she was negative. I finally went to an llmd as i had a gut feeling she had this.She tested positive for this and 2 coinfections. She is now doing well and graduated college and is now in graduate school. I was diagnosed one year ago after being sick with many strange symptoms for 12 years. I am improving but have a long way to go. my father has lyme and was just severely ill with babesiosa. The universal experience we all shared is most doctors are ignorant about this disease but also like to think they do know a lot. They misdiagnosed, failed to treat adequately, and did not treat us with respect and compassion. I could write a book as i know we all could. My prayer is that the medical community would become educated enough to refer people to the doctors who do know about this. I am now paying for all my own treatment as my insurance company denied me 3 times despite my spec scan showing encephalitis and my having numerous smyptoms of lyme and me living in the lyme capital-long island new york. Joanna my thoughts and prayers go to your daughter and family so that you all have the strength to deal with this. I hope that you continue to speak out. i speak to people all the time as my goal is to educate people but i can only reach the people in my little world. You can reach more people so i hope you can do this when you are able to. Wishing you all the very best!!!

December 03, 2009, 8:19AM
Madison Says

Dear Joanna:
I've been your number 1 fan for years since I was 11 years old as I watched you play Maggie on "Growing Pains". I have every episode and all your movies, and you've impacted my life more than you can know, as I am now working as a professor and writing my dissertation. I've also seen your daughter grow up and appear on interviews with you and on "Growing Pains". I can't tell you how shocked and saddened I am about Ashley's diagnosis. I will not only pray for you and your family, but I will support the film, and get the word out about it. I had a good friend die young of Lougerics disease and saw her misdiagnosed, so I know what you must be going through. Please use the media as a way to promote this film and cause. Go on talk shows /Oprah and other venues to get the word out. Best to you and Ashley, and I'll do all I can to promote the cause/film.
Best,
Madison

November 24, 2009, 5:24AM
lorraine Says

I understand completely how you feel. My brother also has lyme and he is also coinfected.

That Nick is a real idiot, whoever posted that lame comment about since when is lyme have anything to do with driving.
What a dumb person, no tolerance. A mentally handicapped person would be smarter than that fool

Also the Insurance industry they are horrible, they dropped him.

I am sorry and for all the people that have it. I have seen Under Our Skin.

November 21, 2009, 7:57PM
C Says

Joanna,

Thank you for sharing your daughter's story. As you know it impacts the patient & the family, as well. Often the voice of celebrities is heard over that of the lay person. There are many of us with lyme suffering & you have helped bring it to the public, media & medical communities attention.
<3

November 19, 2009, 11:04AM
Amber Says

Joanna,

Thank you for speaking publically about your daughter's illness and ordeal.

There are thousands of us in the same boat.

There are thousands more who are still undiagnosed/misdiagnosed.

We try so hard to have our voices heard but we are often thrown aside.

We need someone like you who has name recognition to keep bringing the travesty that is happening in our Country to the forefront.

Most people believe whatever their Dr tells them.

They believe their Dr when they're told that a negative test rules out lyme, and short term treatment only is required for a person who is diagnosed with lyme.

"Under Our Skin" is a great film that is helping to open many eyes....but still it's not enough.

I would love to see you discuss your daughter's ordeal publically on a credible show like Oprah, that gets worldwide attention.

I know many people who have chronic lyme and will not be able to afford treatment because it requires alot of out of pocket costs.

It really is an unrecognized epidemic.

Please keep doing what you are doing....we all appreciate your efforts.

I hope that your daughter's ordeal capture's the attention of many other media outlets.

I only wish that someone cared about all of our stories, suffering and frustration.

I can't imagine this happening in our Country with any other disease, can you?

All the best to you and your daughter.

November 16, 2009, 5:14PM
jms Says

*Envita Medical Center, Scottsdale, Arizona*
For great information on Lyme Disease go to:
www.envita.com
Click on the top right link "Whiteboard"
It's a free sign-up to view educational videos on Lyme Disease, they also have videos on nutrition and supplements.

November 13, 2009, 4:17PM
Maureen Says

Johanna,
My heart goes out to you as I saw my brilliant young son go through the same thing. He's now doing homeopathy and we're seeing lots of improvement but we're not out of the woods yet.
After years of watching my son deteriorate and getting no help from the medical establishment I have little faith left in our health care system.
We do have a lyme literate doctor on board. But with this disease I believe that you basically are on your own as no hospital will really deal with a patient going through a die-off reaction or a herxheimer that treatment will cause.
So we decided to try all the alternative routes. And I thought you might want to know that my lyme literate doctor then admitted that he's seeing homeopathy help people when nothing else did.
Good luck to you and your family.
Maureen

November 12, 2009, 8:15PM
Laura Says

I was first diagnosed in with Lyme Disease in 1991. I lived in NYC and my sister lived in CT. When I got sick, I got really sick. All the symtpoms where there - fatigue, foggy thinking, slurred speach, pain, immense pain. No rash and although I knew about Lyme I thought at first I had a really bad case of the flu. When I wasn't getting better after a few weeks I went to my doctor's office and let me tell you, he was a wonderful practitioner. He tested me right away for Lyme and used the Western Blot test which came back very high. I was treated for a long time (6 months) with anitbiotics. For awhile I couldn't walk, but with my doctor's help I eventually pulled out of my nosedive and was heading back to a normal life. (My doctor taught at Columbia Medical and was VERY well read and up to date on what was out there. For this I am forever grateful, because what he knew, he taught to me, and I in turn taught other doctor's about this disease after he passed away.)

During the 1990s I was infected 3 more times after the initial diagnosis. Bitten and tested again and again. In 2001 I moved out to Los Angeles and away from the deadly east coast to what I thought was a less infected part of the country. Guess what? Early this year I was bitten in the Topanga area of LA and suffered again for 2 months before finally admitting to myself that it was here too. Once again, right outside my front door. My new doctor didn't know much about Lyme Disease and again I found myself educating a medical professional. It took some convincing on my part to get him to go for the Western Blot test. He was very skeptical and when the results came back positive for active Lyme, he referred me to an infectious diseases specialist. Both doctors assured me that mine was a very rare case and that Lyme was not a big problem out here. I told my specialist about "Under Our Skin" and he said he'd never heard about it. I asked him to watch it so he could learn what we all know: that a lack of awareness and prompt treatment can mean the difference between life and death.

As a recovering Lyme sufferer, I continue to treat myself with anitbiotics and practice healthy living as much as I can. Things are getting better, but I am disabled and will be so to varying degrees for the rest of my life. We must educate medical professionals to become more aware and willing to treat this terrible, terrible disease.

Good luck everyone. We need to stand up and be counted and most important, be heard.

Laura

November 12, 2009, 9:56AM
Nani Luculescu Says

I was at the special screening last night in Sherman Oaks & heard actress Joanna Kerns speak to us about her daughters struggle with Lyme. Ashley is 31 years old & was only diagnosed with Lyme disease 4 months ago. Misdiagnosed since age 11, she is now undergoing treatment to boost her immunity until her body is ready to handle the heavy IV antibiotic treatment. Seeing "Under Our Skin" compelled Joanna to pubicly support the film & her mission is to get more people to see if for themselves. She even suggested that as part of your yearly physical, patients should undergo Lyme testing as part of routine care. =)

I just wanted to thank her for her support on behalf of my dad & all other Lyme patients. PLEASE REQUEST "UNDER OUR SKIN" AT YOUR LOCAL LIBRARY!!!!

November 12, 2009, 8:31AM
Kathleen Says

Joanna,
Thoughts and prayers for your daughter. My daughter was diagnosed with Lyme disease freshman year in college after 3 years and thirteen physicians. How fustrating to know your child is sick, yet being told there is nothing wrong with her then being shipped to the next specialist. Ofice visits started with the physician stating," How is school? Do you have problems with your friends? How are your grades?" We were lucky to find a Lyme Literate Physician. After three years of treatment she was in remission. Now it is starting to return.
Thank you for speaking out about this illness. If other public faces like yourself would speak out, perhaps the politicians who have refused to pass Bills for treatment and research,and physicians who have refused to acknowledge what a devistating disease Lyme truly is will be forced to do the right thing.
Have you gone on the CALDA or LDA websites? There may be information of interest there for you and your daughter.
Thank you for the courage you and your daughter have shown.

November 12, 2009, 6:05AM
barbara white Says

Joann...i just wanted to say that for many iv abx is what is needed...i have had a picc line in my arm for a year now with absolutely no problem what so ever....many of my friends have had and currently have picc lines...you must take certain precautions but in most cases they work out just fine....

God Bless

November 12, 2009, 12:08AM
Eleanor Kuser Says

Joanna, I just read the article and was very moved. I've had Lyme since '99 and did not know for years. Recently I am trying out the Beam Ray Rife machine and after my first 90 minute treatment I felt a difference in my body.

I first saw this specific model at the Cancer Control Society's annual convention in Universal City Sheraton, in Aug.'08, and again in Aug.'09. THis year one of the people at the Beam Ray booth was a Lyme survivor who claimed the Beam Ray was what got him better.

I just sent Andy an email to forward to you because I had not realized there was this Blog feature until I returned to read the article one more time before retiring to bed! Feel free to contact me. I am in Santa Barbara.

November 11, 2009, 11:37PM
BettyG, Iowa lyme activist Says

Joanna,

Thank you for coming out publicly to discuss your daughter, Ashley's, lyme disease and how it has affected her and giving up her law career which she worked so hard to achieve!

Yes, please read PJ LANGHOFF's latest book, THE BAKER'S DOZEN, with over 1,000 links showing rebuttals to IDSA drs. statements, etc. You will be impressed by her in-depth work.

Yes, Andy's UNDER OUR SKIN documentary shows what actually is going on in USA. Shame on the govt. for all their conflicts of interest and $$$$. HOG WASH.

I've had chronic lyme for 40 years this christmas; 35 yrs. misdiagnosed by 40-50 drs...UNACCEPTABLE! Many other complications due to all these years of "believing" every dr. who diagnosed me with a new illness/symptom.

Please work also on our 2 lyme bills in congress, HR 1179 and S 1352 trying to get our bills ON THEIR AGENDA to be discussed openly by the subcommittees. They've been there almost 11 years now trying to get to 1st base.

We wish Ashley the best of luck on getting into REMISSION as we all hope to get also. Thanks again for speaking out.

Enjoyed your acting for years; keep up the good work! hugs :)

November 11, 2009, 8:07PM
Nick Says

Since when is not being able to drive caused by Lyme Disease?

This site is quickly becoming a Hollywood version of the quack medical pages at HuffPo.

November 11, 2009, 7:54PM
Amie Says

Joanna,
Thank you for sharing your daughter's accounts. I know about this disease all too well.
I wish your daughter and your whole family, much luck. Please share if you come across something that works, or cures.

To my knowledge and experience, there is no cure. But if you find something, again, please share. I have been on Antibiotics, off and on for 8 years. I do have months that I do better, but I still fight the fight.

The PICC line was hell and I don't recommend it. I prefer the intramuscular injections.

God bless your daughter and whole family,
Amie

November 11, 2009, 7:51PM
AlyssaO Says

Joanna,

Thank you for speaking out. UOS is a powerful film because it not only tells the real story of Lyme disease and treatment, it is helping people become aware of what Lyme is, what symptoms you might have and how to go get help. The more people are aware, the faster they will get treatment and not have it go on as long as some of the other commenters on this list as well as your daughter. Your daughter is lucky to have a supportive mom like you. Please keep ringing the bell for all of us Lyme sufferers!

November 11, 2009, 6:58PM
SIck and Tired in CT Says

Thanks Joanna

Ive had Lyme since before your daughter was alive. The year she was born I was trying to make it through high school with many of the same problems that she has now and not knowing why. Lyme was not widely publicized back then. I thought it was all in my head. Since then Ive watched my dreams die, my prospects wither away. Ive seen my friends and family pass on one by one many of them thinking I was an abject miserable failure. Maybe theyre right. Maybe I could have handled this better. Im still alive; I can still walk, see, hear, and speak and I know there are others in the world far far worse off than I am and I am grateful for every thing I do have.
One of the nay-saying self proclaimed lyme disease "expert" doctors featured in Under Our Skin now lives not too far from where I grew up and was infected with lyme. How do you think I feel every time I drive past his home?

November 11, 2009, 5:38PM
wendy Says

thank you. no words for how much i appreciate what you are doing for your daughter and for all of us that are too sick to be advocates for ourselves. people out here in CA used to look at me like i had antlers when i told them i was very ill with Lyme. some still do... but in the past 2 months, i sent 5 very sick people to my doctor and all 5 people have been diagnosed with Lyme and now are getting desperately needed medical help. that is just the people *i* know... slowly people are getting educated. but it takes energy to do that, energy i wish i had. unfortunately Lyme, Babesia, and Bartonella use up quite a bit of my energy.
so THANK YOU for everything that you are doing. *hugs*

November 11, 2009, 3:43PM
Joanna Kerns Says

I want to thank everyone for all the kind words of support for my daughter's recovery.
As a mother, I felt intuitively for years that Ashley had Lyme disease but sadly listened to doctor's blind to the specifics of Lyme and trusted their opinion. Now I know better. Too many doctor's who are specialists in one area have no understanding or compassion outside of their specialty.When I see these comments I know all of you have had the same experience. It's time for all of us that are well enough to take action for those who cannot. My husband and I urge you to tell everyone you know about " Under Our Skin"!

November 11, 2009, 1:25PM
Gayle Says

Documentary films can have tremendous reach and power. I sincerely hope your daughter and all the sufferers of this disease get the help they need.

November 11, 2009, 11:59AM
Margie Says

Joanna.....

I am sorry that your daughter has this disease and has become so ill that she can't even start treatment yet....

I have been suffering for about 20years( on and off) and I know the road she has before her....

When you are a suffer with Lyme Disease you can't advocate for your self...

Thank you for sharing this and speaking out..
... it not only helps your daughter but all of us in the Lyme Community.....

praying your daughter will get the strength to start treatment...

again thank you for voice....

November 11, 2009, 11:47AM
Julie Zabrucky Says

Thanks for speaking up Joanna! We need more brave people like you to break the silence. I'm so sorry that your daughter is suffering with this hideous disease. With healthcare reform possibly around the corner President Obama needs to know how many people are suffering in silence, are being being misdiagnosed and ignored by mainstream medicine, and or are unable to receive proper treatment because of the politics behind the illness. (Often no insurance coverage). How many people can afford to pay thousands of dollars out of pocket for long term antibiotic treatment? Which is often needed in the Late Stages for even a chance of recovery. I now have late stage Neuro-Lyme because I was misdiagnosed for at least 5 1/2 years by a world renowned University. My fist Lyme Elisa was negative so Lyme was ruled out. Under Our Skin tells the story so well! Thanks to Andy Abrahams Wilson and you for making a difference! Under Our Skin is a great teaching tool and I give the movie to all my doctors! May healing come to your daughter. Blessings~ Julie

November 11, 2009, 11:25AM
Debbie Says

My husband has Lyme - probably has had it for many, many years.
It took quite a while to find a Lyme literate doctor. He has been treated in various ways, but is still struggling. He is on disability. He uses a walker or wheelchair. His cognitive functions have been extremely affected. He lost vision in one eye.
Our Neurologist tells us he has "MS". Our insurance company will pay for MRI's, physical therapy, any testing, medications, etc., as long as the diagnosis is listed as "MS". They don't want to hear the word "Lyme" (even though my husband has been an outdoor person, hunter, fisherman, etc. all his life in PA - a hotspot for Lyme), therefore we cannot get a doctor in the "regular" medical community to listen to us or provide the care he needs. It is sooooooo frustrating.
The costs to give proper treatment for Lyme would be much cheaper than the life-long treatment he will receive with MS.
We cannot afford to pay out of pocket for intensive Lyme treatment.
Please keep the issue in the limelight.

November 11, 2009, 11:11AM
Allison Caruana Says

Joanna,

I applaud you for taking action to promote awareness of this disease. I have suffered for over 30 years before my positive results were finally recognized. This disease is horrific and the atrocities being permitted to occur in the medical field have to brought forth and those responsible for MAKING us suffer this long need to be held accountable!

Thank you,
Allison Caruana

November 11, 2009, 9:44AM
Jennifer Navara-Rahilly Says

Joanna,

I cannot express enough just how sorry I am that your daughter is suffering so much. My mom is going through the same thing with me and now my son, her grandson. I too went undiagnosed sice childhood, I am now 33 years old and on aggressive IV antibiotics as well as oral meds. My son is being treated too.

I commend you for taking a stand against this terrible, debilitating disease. I pray that this will start to change things for so many of us who are suffering in silence.

Thank you, thank you, thank you!! I applaud you!

November 11, 2009, 9:42AM
Connie Says

Joanna thank you for coming forward and sharing your daughter's story. It is almost identical to that of my own daughter. She is now 17, but started with the same things when she was 11-1/2. There has got to be more done in the medical community about tick borne illnesses.

November 11, 2009, 8:29AM
Helen Raser Says

Joanna,

As the mother of a beautiful 22 year old daughter whose life has been stolen from her because of this disease, my heart goes out to you. I know first hand the pain you are in watching your child suffer. It's the greatest torture on earth that a mother can endure.

I commend you and thank you from my heart for stepping up to the plate and speaking out for the MILLIONS of victims of this disease that are part of the politics, greed, and egos that have thrust us all into this "medical underground" that feels like a science fiction movie we can't seem to get out of.

Thank you for your courage and determination ... you ARE making a difference along with Andy Abrahams Wilson and his poignant film, Under Our Skin. We need more angels on earth like you!

November 11, 2009, 8:29AM
Helen Raser Says

Joanna,

As the mother of a beautiful 22 year old daughter whose life has been stolen from her because of this disease, my heart goes out to you. I know first hand the pain you are in watching your child suffer. It's the greatest torture on earth that a mother can endure.

I commend you and thank you from my heart for stepping up to the plate and speaking out for the MILLIONS of victims of this disease that are part of the politics, greed, and egos that have thrust us all into this "medical underground" that feels like a science fiction movie we can't seem to get out of.

Thank you for your courage and determination ... you ARE making a difference along with Andy Abrahams Wilson and his poignant film, Under Our Skin. We need more angels on earth like you!

November 11, 2009, 6:30AM
Cindy Says

Thank you so much for getting involved ...I am so sorry to hear about your daughter. I hope that she will start feeling better soon.
This is an insidious disease, that so many of us are suffering from. I still find it hard to believe that the medical community has such a hard time dealing with it...Yes political...but the suffering needs to stop.
Sending good wishes to your family. Thank you again for your support.
Cindy

November 11, 2009, 6:29AM
Cindy Says

Thank you so much for getting involved ...I am so sorry to hear about your daughter. I hope that she will start feeling better soon.
This is an insidious disease, that so many of us are suffering from. I still find it hard to believe that the medical community has such a hard time dealing with it...Yes political...but the suffering needs to stop.
Sending good wishes to your family. Thank you again for your support.
Cindy

November 11, 2009, 6:01AM
Jorene Thimmes Says

Joanna, I am so sorry to hear your daughter. Lyme disease has taken the past two years from me. Thank you so much for bringing much needed awareness to this horrific disease!

November 11, 2009, 5:47AM
Barbara White Says

Joanna thank you so so much for taking a stand on this horrific disease that is continuing to delibate many many people all over the world. I hear of stories almost daily now about people suffering...many misdiagnosed for a long time. Ive been very very sick since may 07 and im now a patient of the doctor featued in UOS.....i HIGHLY recommend that you get your daughter to see him asap...he is the best and unfortunatley he gets the patients that the other doctors have no luck with....like me.

We will eventually have a victory but we need people to speak out about what is really going on so more doctors will treat without fearing that their medical licenses will be suspended or revoked.

Wish you the best
God Bless
Barb White

November 11, 2009, 5:09AM
Robin-CT Says

Joanna, I am so sorry your daughter has had to suffer for so long and truly hope she is on her way to recovery. Thank you for speaking out. We need more brave people like you to share their stories so this terrible disease can be treated properly!! Thank you so much!!!

November 11, 2009, 3:53AM
Ria Heslop - UNITED KINGDOM Says

Firstly I send best wishes to 'Ashley' and hope that she gets the correct care as soon as possible.

Under our Skin and Andy Abrahams is just a God Send to everyone in the Lyme community, to get the word out at how serious a problem Lyme Disease is.

Sadly this is a worldwide problem - I live in the United Kingdon and travel to the USA for treatment - I personally have suffered so much, thankfully after a journey of seeing the 'wrong' doctors I finally found the correct doctor and now I am making steady progress and month by month things are changing for me, my story can be read at www.jemsekspecialty.com/shownews.php?id=13

So anyone reading this please ensure you visit ILADS for information and get the correct medical care from the outset.

Best Wishes,
Ria

November 11, 2009, 1:29AM
Nathalie Says

Love what u are doing by spreding the movie and educate others by it. I hope u can bring the movie to Sweden, it would be great! In this country they have no Lyme dokters at all, so every Lyme patient are forsed to stay sik or if they have money they go to Germany for antibiotic treatment.
I have Lyme for 15 years and was undiagnosed until 2007, but im still wery sik. We nead treatment!!!! I hope u continue publiching the movie and i hope some day u bring it to Swedens screnings. God Bless /Natti

November 11, 2009, 12:38AM
Vicki G. RI Says

These horrific stories are everywhere and silenced at the same time. The truth is out and action needs to take place NOW. This disease is everywhere-any time the word is mentioned, somebody knows someone silently suffering and giving up. As a victim and an advocate, I have a bumper sticker on my vechile and people wait for me to leave the grocery store to talk and seek help. This is a tragedy.

Joanna, I'm so sorry your daughter is one of us, but we really need your voice. Nobody will speak out for us, and god knows we have tried. Oprah ignored pleas for years, as well as Dr. Oz. and every other avenue that has been taken...Very insulting to the lyme community. Human beings should never be thrown into diagnostic buckets like we have been.

The post above about PJ's latest book reads like science fiction, but her facts are just that, facts!

How in the world could this have been allowed to go on for so long? So many innocent thriving individuals and familys taken down to their knees, and the children never being given a chance.
We're getting louder and angrier as some of us get help, and the stronger need to stand up for less fortunate. I will get my life and career back, I'm feeling very hopful after over 25 years of torture, but I will never to be able sit idle until this madness ends.

Thank you for speaking out for us.. you are bringing a lot of hope into many peoples lives right now, by talking about Under Our Skin! And thank you The Wrap/Steve Pond for printing this article without the usual fabrication's seen from many other resouces!

November 10, 2009, 11:34PM
NANCY MACKAY Says

P.J. Langhoff has a serious of books called Its all in your head. and she has the only book that was entered as evidence at the IDSA July 30 09 hearings called The Bakers Dozen & The Lunitic Fringe you can find them at amazon. Her books speak the truth and she fights for all of us.

November 10, 2009, 10:40PM
Abby Says

Joanna - Thank you!!